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Friday, November 3, 2017

The Monster Calls



Mindy and Landon would like to share their devastating news. People are beginning to slowly start asking questions, and they are worried that they will continue to see an increase as people tend to do, meaning well, but still overwhelming at a time like this. Please, no matter how well meaning you are, try to understand that this is a really hard time, they know people care and love them and Taylor, but they just would prefer to avoid being bombarded. I will try to keep everyone up-to-date via this blog and link it into our Facebook account. If you have questions you can message me, I will get back to you.

So Taylor has been feeling unwell, progressively worsening and Landon's spidey (not a "real" word, but I think you will all understand what I am saying) senses were going berserk. Landon took Taylor to the Stollery on Tuesday October 31st, 2017. They gave Taylor a CT scan, which showed some "stuff" (I am using my most excellent medical terminology here). They then decided they needed to do an MRI. There is generally a wait but the Stollery and the team there are AMAZING, and got our girl in quick. Seriously, these people are so wonderful.

So the MRI showed a large mass growing in her brain stem, the Pons,  roughly the size of a golf ball, the same size as her last tumour so long ago. Taylor had an MRI 10 months ago that was clear, so this tells us it's fast growing. The tumour is pushing on her brain and causing her to feel sick (throwing up, headaches, off balance).

Let us just say that due to the location of the tumour its not looking positive, although I haven't lost hope, as we wait for further answers. Taylor had an MRS scan today that was more focused into the area of the tumour, but we wont't know anything until they actually open up her head and see. They plan to TRY to take a biopsy on Tuesday. The biopsy will let us know if its the same cancer, or a different one. Why I emphasize TRY is that the Pons are an area you don't fart around with as it can be fatal.

At this point Taylor has been given steroids to help decrease swelling and the ease the pressure on her brain. She is feeling better, however, this is temporary bandaid as the tumour continues to grow it will require something different.

I think that is enough for all of you now until we know more. I will update as I get information. Please DO NOT CONTACT MINDY OR LANDON! When I know how people can help, I will let you know. They would also appreciate people saving advice on all the various methods of alternative therapies, or natural things to try, etc. To say we feel like a freight train has run over us does not even begin to illustrate how this feels. Please prey for Taylor, send her your hope, your strength and your energy.

10 comments:

Sharon Harmatiuk said...

Oh no...i'my sorry to hear this devastating news..stay strong Taylor, I will keep you in my thoughts.

Tara Lamabe said...

I am so sorry to hear this. Taylor and my daughter were in Grade 1 together. She is such a happy child around the school and always says hi to me when she sees me there. Stay strong Taylor your school family is sending you our love. In our thoughts.

Edwina Franco said...

Words cannot explain how I feel right now... scared and tears running.... We can only hope for a new miracle .. love you guys.

Tammy Stark said...

I am so sorry, this breaks my heart. I am tearing up while I write this. I am praying for the best outcome for Taylor. God Bless your whole family.

Candace Boudreau said...

Oh no you guys! I am so sorry. If I can do anything, PLEASE let me know. Thinking of you all. Xo

Melissa Byrne and family said...

Beyond heartbroken at this turn of events. Landon and Mindy have been such an incredible support to me and my family as we have been dealing with my little nephew's recurring brain tumours for the last two years. I hoped and prayed that we would all have no more bad news to share. Following closely from NL and sending all our love and prayers to the whole family ♡

Unknown said...

So much love and prayers sent your way 💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕

Jody Tom and family said...

We were so sorry to read the devistating news. Our thoughts and prayers are being sent to everyone. Please let us know if there’s anything we can do.

Renee DeWitt said...

Love Renee,Hannah,Gabriellah,Noah,Joshua and Grace 💕💕💕💕💕💕💕

ingrid cheston said...

Such very sad news, Praying for you all for strength and for the Drs to find and cure.