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Thursday, September 30, 2010

update from meeting

Okay so the scoop is she has cancer now in the spine and brain. They are going to do radiation on her entire brain and spine in the hopes of killing it or prolonging her life by staving off the cancer. She will have around 33 straight days of radiation, hopefully starting in 3 weeks. Of course MRI's will continue every 3 months. She may have learning developmental delays and growth stunting. Her pituitary gland will be fried so they will need to give her hormones, etc. She will probably be shorter.

Keep up the prayers and wishes. We need HOPE for the journey ahead. Taylor is such a miracle it is so hard to believe looking at her that this is really happening. She seems so healthy, smart and happy. Tomorrow they will be talking to the neuro-psychologist and maybe we will learn more about potential delays. Will let you know when I know.

Leah

Meeting is at 3:30pm

Hi, Just wanted to let people know that the meeting will be at 3:30pm. Please do not call Mindy and Landon, but wait for my update. I know everyone wants to know, but its way too overwhelming...extremely difficult and frustrating for them to have to keep telling people over and over.

Thanks for respecting their peace,

Leah

Wednesday, September 29, 2010

It is back...

Well our hearts all started to ache today. Landon and Mindy got a call about scheduling a meeting tomorrow...she just had the MRI yesterday, so that was pretty quick. Landon and Mindy both texted me at school if I could take the day off and I think my heart stopped, knowing that was out of the ordinary. I texted Landon back and he told me that it was back. Nurse Claire always tells them right away if its good and she didn't so it was a sure answer that they found something. Landon called and got it out of her that they found some in her spine this time. Our hearts all ache, we of course were hoping for a different outcome.

So although this is devastating news we will see tomorrow what the game plan will be. Hopefully its just in the spine, hopefully it can be killed with Radiation. I will update you all tomorrow on what will happen. I am going to the hospital with them, this is just too devastating for words. Our Dad was just diagnosed with Terminal Colon cancer, he has months to live and now this...

Please pray for Taylor. I am asking for you to send Landon, Mindy and Taylor all your hopes and wishes tomorrow and for the days to come. Keep repeating "When you think hope is gone, that is when you need to look farther than the eyes can see."

Monday, September 27, 2010

Taylor's MRI tomorrow!

Tomorrow is Taylor's next MRI, so we will be at the Stollery for the morning! Please send us all your hopes, wishes, prayers, thoughts...whatever you want! We meet with the doctors on October 7th, so hopefully we hear back before then, but if not, we will definitely have news that day!

Love you all, and thank you for all that you have done and still do for us!

Mindy, Landon & Taylor

Sunday, September 5, 2010

The Birthday Girl

Taylor is turning TWO!

We just celebrated Taylor's 2nd Birthday on September 4th - I can hardly believe that two years ago I was waiting for this little princess to be born, not knowing if it would be a boy or a girl, and wondering if she would ever come out...she was born 10 days late!

In reflection of these past two years, we have enjoyed so many extremes - both highs and lows - but most of all, we have had a great appreciation and celebration of life. I hope that you continue to send your love, support, and prayers for Taylor, as we are certainly not out of the woods yet...we have a very long journey ahead, but every test that comes back negative is just one small step closer to beating this terrible disease!

Taylor's next MRI is September 28th, and we also go in on October 7th for a speech assessment and her quarterly hearing assessment and follow up with the doctors...so please keep us in your thoughts and prayers during this time - as the worry has already begun...these next few tests are the real serious ones...as this will be the 9 month follow up...at this time last year, they started seeing the spots again, and we were back for her second surgery just after her 1st Birthday...I can't help but go back to those days and how confident we all were that we were done with this...and how devastating it was to find that we weren't...

Love,

Mindy, Landon & Taylor