Saturday, October 2, 2010

Have not received any updates

Well I am waiting to find out more about the consequences of the radiation. I am sure that it is a "go". Mindy and Landon got the pictures that the "Kids with Cancer Society" had done for 20 families. They are gorgeous and I posted them on there for you all to enjoy. I also have Mindy's new tattoo on here. My cousins Felicia and Melissa both have been struggling with all the stuff that has been goig on in our family, so many dying of cancer, etc they came up with a design "Faith" with the dot of the "i" being the cancer ribbon. Very inspiring! So Mindy and Landon decided to do "Hope" with the "o" being the gold cancer ribbon for childhood cancer. I am going with my best friend Karla when she comes to town to get my "tatty"...I am feeling like a naughty child as I never saw myself getting a tattoo.

Taylor has been suffering allergies and a sinus infection. She has been a cranky bear and only seems happy if she is bossing everyone around.LOL Got to love her personality! She is pure joy, dancing wherever she finds music, and even if there is none...doing frog hops x3, the cutest thing to see...talking up a storm. Taylor and I like to play the "mine" game, I tell her its mine and she responds back with mine. We continue this for awhile until she starts getting mad and then I offer her "you want to share" to which she responds "share" and she gives me a tiny amount of whatever we share so she gets the Lions share.LOL

I got a new quote for you:
"I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!"-Dr.Suess

Lets all grab our big bats and beat cancer! Sending you all my warmest thanks for all your support. Send Taylor Wishes, Hopes and Dreams. Pray for her cancer to take a hike! The Doctor's have told Mindy and Landon that Taylor is medically not supposed to be where she is, that it is something else that keeps her so strong...I'll let you guess what that is....

Thursday, September 30, 2010

update from meeting

Okay so the scoop is she has cancer now in the spine and brain. They are going to do radiation on her entire brain and spine in the hopes of killing it or prolonging her life by staving off the cancer. She will have around 33 straight days of radiation, hopefully starting in 3 weeks. Of course MRI's will continue every 3 months. She may have learning developmental delays and growth stunting. Her pituitary gland will be fried so they will need to give her hormones, etc. She will probably be shorter.

Keep up the prayers and wishes. We need HOPE for the journey ahead. Taylor is such a miracle it is so hard to believe looking at her that this is really happening. She seems so healthy, smart and happy. Tomorrow they will be talking to the neuro-psychologist and maybe we will learn more about potential delays. Will let you know when I know.

Leah

Meeting is at 3:30pm

Hi, Just wanted to let people know that the meeting will be at 3:30pm. Please do not call Mindy and Landon, but wait for my update. I know everyone wants to know, but its way too overwhelming...extremely difficult and frustrating for them to have to keep telling people over and over.

Thanks for respecting their peace,

Leah

Wednesday, September 29, 2010

It is back...

Well our hearts all started to ache today. Landon and Mindy got a call about scheduling a meeting tomorrow...she just had the MRI yesterday, so that was pretty quick. Landon and Mindy both texted me at school if I could take the day off and I think my heart stopped, knowing that was out of the ordinary. I texted Landon back and he told me that it was back. Nurse Claire always tells them right away if its good and she didn't so it was a sure answer that they found something. Landon called and got it out of her that they found some in her spine this time. Our hearts all ache, we of course were hoping for a different outcome.

So although this is devastating news we will see tomorrow what the game plan will be. Hopefully its just in the spine, hopefully it can be killed with Radiation. I will update you all tomorrow on what will happen. I am going to the hospital with them, this is just too devastating for words. Our Dad was just diagnosed with Terminal Colon cancer, he has months to live and now this...

Please pray for Taylor. I am asking for you to send Landon, Mindy and Taylor all your hopes and wishes tomorrow and for the days to come. Keep repeating "When you think hope is gone, that is when you need to look farther than the eyes can see."

Monday, September 27, 2010

Taylor's MRI tomorrow!

Tomorrow is Taylor's next MRI, so we will be at the Stollery for the morning! Please send us all your hopes, wishes, prayers, thoughts...whatever you want! We meet with the doctors on October 7th, so hopefully we hear back before then, but if not, we will definitely have news that day!

Love you all, and thank you for all that you have done and still do for us!

Mindy, Landon & Taylor

Sunday, September 5, 2010

The Birthday Girl

Taylor is turning TWO!

We just celebrated Taylor's 2nd Birthday on September 4th - I can hardly believe that two years ago I was waiting for this little princess to be born, not knowing if it would be a boy or a girl, and wondering if she would ever come out...she was born 10 days late!

In reflection of these past two years, we have enjoyed so many extremes - both highs and lows - but most of all, we have had a great appreciation and celebration of life. I hope that you continue to send your love, support, and prayers for Taylor, as we are certainly not out of the woods yet...we have a very long journey ahead, but every test that comes back negative is just one small step closer to beating this terrible disease!

Taylor's next MRI is September 28th, and we also go in on October 7th for a speech assessment and her quarterly hearing assessment and follow up with the doctors...so please keep us in your thoughts and prayers during this time - as the worry has already begun...these next few tests are the real serious ones...as this will be the 9 month follow up...at this time last year, they started seeing the spots again, and we were back for her second surgery just after her 1st Birthday...I can't help but go back to those days and how confident we all were that we were done with this...and how devastating it was to find that we weren't...

Love,

Mindy, Landon & Taylor