Taylor gets ear tubes today

So Taylor is going in to get ear tubes today due to her many ear infections. I am sure this well be an easy surgery and Taylor will be fine, just hate the poor thing constantly going under the knife.

I have not seen Taylor in a long,long time. Things have been stupid busy. I am going to make sure I see her this weekend, even if I need to peak at her through a window.LOL I am sure they will let me in the house.LOL Hopefully I can grab some pics of her to freshen up the ones on the blog!

MRI CLEAR!!!

Well hello,
I am being a very bad blogger. Taylor's latest MRI results were in on Friday, February 11, 2011. ALL CLEAR. Mindy said when she was off the phone just vibrating. She laughed and said she probably should have been vibrating before the news, but I think she has been trying to be really brave and not focus to much. I am so relieved with the news. We all seem to get really depressed, edgy, possibly crazy around MRI time so its nice to be sane again.LOL Funny thing is that our Mom who generally is always the more pessimistic this time was completely unfazed. She was like "it's a miracle, so I have to believe." Boy do I love my Mom!

I have not seen my darling girl and think I may be going into withdrawals. I MUST see her this weekend even if I have to just show up at their house and peek through windows.LOL My Mom had her for a sleep over yesterday and has filled me in on all her "latest". Taylor had a "Shut up" session where Taylor told Grandma to "Shut up" and then would say "I don't have to shut up", LMAO I think Mom was wondering what that was all about. Mindy told Mom that she has been doing this a bit lately, but that they tell her that she can't say that, to say "be quiet"....LOL I did the same with my kids, told them it was a "bad" word and they were not allowed to use it. I still think it would be funny to hear Taylor telling people to "be quiet". The nerve of her as she is usually the loud one! LOL She is obviously testing her boundaries.

Grandma was also super impressed with Taylor's potty training, she thinks Taylor is training herself. Yes Grandma, Taylor is BRILLIANT! LOL

On Friday, February 11 Landon, Mindy and myself got to experience a very short volunteer stint at the annual Valentines Day Hair Massacure. What an absolutely amazing event! Landon did decide on shaving his head so he is a bald eagle. I am so thankful we got to be a part of the event. It was so surreal and possibly a sign as I had many "Taylor" registrants (although some different spellings of the name).

MRI February 8th

So Taylor's next MRI is February 8th. Please send all your well wishes, prayers, and hope to us - we are starting to get wound up in preparation for this day - as we do every 3 months!

I just wanted to thank all of you for all of your support, I am constantly in awe of how many people care and support us. Just this week, I had three lovely surprises at work from some colleagues that most certainly made me want to cry, I can honestly say there are some fabulous people that work with me. For every one of you that thinks about us from time to time, and maybe just appreciates the smaller things in life, and doesn't take their children and friends/family for granted - I thank you for coming along with us on this journey.

And, for those of you who I haven't harassed yet, we are participating in the 2011 Hair Massacure at WEM on Friday February 11th, so if you would like to make a donation, please sign on to the hairmassacure.com website and if you pledge a participant, Landon and I are both listed along with the team name "A Wish for Taylor" - This cause is especially close to us, as it funds the pediatric oncology ward at the Stollery, the Make a Wish foundation, and the Ronald McDonald house...I would say almost every kid we have met in our two and a bit years has benefited from these charities...and I couldn't imagine life without them.

Thanks again, and we will keep you posted with regards to the MRI results!

Taylor Update Sunday January 30th, 2011

Well I have been racing around doing all of a number of things, so have not been the best blogger. Taylor is actually doing very amazing, although she has been battling colds, and ear infections, but those are fairly "normal" kid stuff.

After Taylor's trip to Disneyland she became hooked on Toy Story. She has all three shows and can watch them all day long...she wakes up demanding "woody", comes home "woody"...you get my drift. Taylor is also doing a fabulous job talking and can parrot really well. I joked that when I babysat her to my husband that maybe I could teach her some "choice" phrases she could stun Mindy and Landon with, but thought better of such a silly idea.

Taylor has another MRI February 8th with the results being gone over on the 17th. Please make sure to keep Taylor in your prayers, send her wishes and hopes, these are such amazingly hard days waiting to find out what happens next.

St. Valentine's Day Hair Massacure!

So Landon and I have decided to help raise funds and awareness for the St. Valentines Day Hair Massacure this year. We have both died our hair HOT PINK and are collecting online pledges and/or cash/cheque pledges in person. If you would like to learn more about the Hair Massacure or donate to the cause - please go to www.hairmassacure.com You can pledge a participant and look up our team " A Wish for Taylor" or search for Landon or Miranda Thiessen to see our pages.

It has been quite a while since the last post as there hasn't been much to report on the medical side of things. Taylor had a wonderful Christmas with Family and Friends, has been growing so fast. She is in love with Toy Story (1, 2 & 3) and asks to watch "Woody" first thing in the morning, all day, and all night if it isn't on already. She has been talking up a storm learning new words daily and picking things up so quickly that we really have to watch what we say around her, since she repeats almost everything.

Her next MRI is on February 8th, with our results meeting scheduled for February 17th...but as usual, hopefully we get some news before then, as it is too long to wait! She has been going in for her other checkups and tests regularly, and they continue to be amazed by how unaffected she seems to be by everything she has been through - a true blessing!

Things are finally starting to slow down a bit from all of the excitement of the trip and Christmas, and with all of the snow we have had and the colds and flu bugs that have been going around, it feels as if we haven't had a moment to catch our breath...so hopefully we will be able to actually start visiting some of you that haven't seen us in a while!

Hopefully we will get some time to post some updates on here soon...but just for those of you who wanted a sneak peak...now you know :)

Love,
Mindy, Landon & Taylor
XOXOXOXO

MRI Results...official!

Well although everyone may know from my prior posts that Taylor's last MRI was clear, however their official meeting was today. Basically what they told them (Mindy and Landon) was that they see NOTHING in this scan...no flags, etc. Everything was perfect, not even a smudge on the MRI! Hurray. Speech Pathologist thinks she is doing great and the Neuro-Psychologist was amazed at how "grown-up" she is. Of course everyone was in love with her and sung her praises....but she is pretty darn awesome.

So I have not had a chance to ask Mindy fifty thousand questions...I will though and hopefully update you. I still want to find out about their action plan on MRI's...will they be extended to 6 months, or do they still have to be done every 3 months? I also wanted to know what they thought about taking her to either St.Jude's in the USA or to Toronto where there are some "expert" on her form of cancer (it is still not big where knowledge is concerned, but maybe they would have some insight?) I also worry about any signs that may signal growth, etc. Taylor now getting a tad older, at her whopping 2 years of age, is a bit easier to read some signals in behaviour in relation to "normal". I think there are always questions.

I am just so thankful. Taylor has gotten to go on her wish vacation, she has pretty much completed her wish list, thanks to all her supporters, angels here on earth. I get to babysit this Saturday...apparently she can be a tyrant, so I may relive my babysitting her when she was 6 months old playing strange...LMAO.

They are home!

Well yesterday Mindy, Landon and Taylor all returned from their journey. It was a long trip home, layovers, etc. Mindy was back at work today. Hopefully I will get some news or more stories to share when I see her this weekend.

Thanks to the tremendous support of everyone who made Taylor's wish come true! It is so phenomenal that everyone has reached out and helped touch Taylor's life!